...I spent hours this past weekend looking for a single photo from the early 1990s. I had forgotten what someone looked like that made such a deep impact on my life. Here's the punch line...I didn't find it.
Almost two weeks ago, an actor died from ALS, otherwise known as Lou Gehrig's disease. I couldn't recall a single piece of his worked I'd watched (no, I never have seen Grey's Anatomy), but what I did watch was his health deteriorate the same way Jason's had more than 20 years ago. And suddenly, when his death was announced I found myself crying uncontrollably. Not just for the profound sense of loss that his family will feel for the rest of their lives, but for the loss that I never grieved all those years ago.
I was young, he was not. By the time I knew he was battling ALS, I had fallen deep. No one should be surprised that I was stubborn then, just as I am now. I truly thought he would be able to fight - and live. It's also how I see the world - rainbows and unicorns always. But his story didn't end like that, and neither did ours.
Within a year, he could no longer live on his own. Six months from there, he lost his ability to communicate. I thought it was so cool that he too had the same technology as Stephen Hawking did. I got used to the voice of the computer communicating with me. It obviously could not replace his.
By the time I finished my sophomore year of college, we had both come to the realization that if he was alive by the time I graduated, we would not have a fairytale ending. It was the most mature conversation I've had in my life. One of acknowledgement for what we brought to each other's lives and the care that needed to be given when telling someone they would flourish without them in your life.
I went on to visit him when I would come home from college up until the time I graduated. By that time, I had fallen in love with the person who would become my husband and out of respect for him, we decided it was best for me to stop visiting. In all actuality, I couldn't continue to watch him die. It was heartbreaking.
His courageous battle ended 17 years after he was diagnosed, passing away on Independence Day. I remember thinking when I heard the news, so symbolic getting his freedom on that very day.
Years later, his parents shared with mine journal writings he made during the time of our relationship. Let me tell you, they are a real pick-me-up in times of struggle. You never know the impact you have on someone and I'm grateful for his parents for sharing them so I could better understand the impact I made on his life.
I regret that I wasn't mature enough - or trusting enough - to ever share what he did for me. And it's only now that I could. Which is why I think this actor's passing has been so sad for me. It reminds me of a time in my life when I saw how the disease robs the brightest of lights and changes the lives of families forever.
I'm still searching for the photo. I believe I will find it one day (remember, rainbows and unicorns). Until then, I have the best of memories.
